Systemic Lupus erythematosus (SLE) is a unique, complex disease with a wide scope of symptoms. It is also an elusive condition in that it affects individuals differently and often does not follow a predictable course. For example, a patient who appears to be in remission during a routine office visit can present at an emergency room the following week with a sudden stroke.
A person diagnosed with lupus may have symptoms and disease activity that are easily managed with treatment, but it is not uncommon for health care professionals to encounter a lupus patient with numerous severe symptoms that are difficult to control. No two lupus cases are alike. As a result, care of the patient with lupus erythematosus is a challenge that draws on all the resources, knowledge, and strengths the health care team has to offer. Each member of the health care team
– physician, nurse, therapist, dietitian, social worker, among others – has an important role to play in treating specific aspects of the disease and in supporting the patient to cope with his or her condition.
Guideposts Trust exists to provide direct services in the community for people with or recovering from mental health issues, for people with Alzheimer’s and other forms of dementia, for people with a learning disability and for children with special needs. We believe that all people have a right to an equality of opportunity.
Our vision is of a world in which people do not die prematurely of heart disease. We’ll achieve this through pioneering research, vital prevention activity and ensuring quality care and support for everyone living with heart disease.
Across the UK the NSPCC provides services such as 24-hour helplines, therapeutic centres and young witness centres – making a big difference to children’s lives.But until every vulnerable child has the support they need, we will continue to develop our services and this is why we still need your help.
Alzheimer’s Society is a membership organisation which works to improve the quality of life of people affected by dementia in England, Wales and Northern Ireland. Many of our 25,000 members have personal experience of dementia, as carers, health professionals or people with dementia themselves, and their experiences help to inform our work.
We are the world’s leading charity dedicated to beating cancer through research. We have saved millions of lives by discovering new ways to prevent, diagnose and treat cancer.
NHS Choices is the online ‘front door’ to the NHS. It is the country’s biggest health website and gives all the information you need to make choices about your health.
We’re the Parkinson’s support and research charity. For more than 40 years we’ve been working to find a cure and improve life for everyone affected by Parkinson’s.
We believe that age needs respect. It needs kindness. Sometimes it needs help. Because there is strength in numbers, Age Concern and Help the Aged have joined forces to become Age UK – so that we can be here for everyone in later life.
Epilepsy Action is the largest member-led epilepsy organisation in Britain, acting as the voice for the UK’s estimated 456,000 people with epilepsy, as well as their friends, families, carers, health professionals and the many other people on whose lives the condition has an impact.
The Disabilities Trust was founded in 1979 to provide an imaginative new concept of personal care and specialist housing for people with special needs. Since then our services have expanded to include purpose-built accommodation, community-based housing, respite care, education, community enabling and rehabilitation.
Directgov is the UK government’s digital service for people in England and Wales. It delivers information and practical advice about public services, bringing them all together in one place. You can access Directgov on the web or on your mobile.
- Caring for a Loved One With Lupus (everydayhealth.com)
- Is It Alzheimer’s? (everydayhealth.com)
- Lupus Foundation: FDA Clears First Lupus Drug Since 1955 (medicalnewstoday.com)
- Health Complications Associated With Lupus (everydayhealth.com)
- Clues That a Lupus Patient Needs Care (everydayhealth.com)
- New Lupus Treatment Benlysta: FAQ (lupus.webmd.com)
- Health Buzz: FDA OKs First Lupus Drug in 50 Years (health.usnews.com)
- Researchers uncover link to increased atherosclerosis risk in lupus patients (eurekalert.org)
- Handle with special care (telegraph.co.uk)
- Alzheimer’s failings force 50k into care homes (dailymail.co.uk)
- Dementia drama (guardian.co.uk)
- Dementia – Beyond Alzheimer’s Disease (everydayhealth.com)
- Britain faces dementia catastrophe without ‘aggressive’ research drive (telegraph.co.uk)
- Up to three-quarters of dementia sufferers undiagnosed (telegraph.co.uk)
- Dementia home support ‘travesty’ (bbc.co.uk)
- FDA Approves Benlysta to Treat Lupus (prnewswire.com)
- New Lupus Drug Benlysta Offers Long-Awaited Hope (newyork.cbslocal.com)
- What to Expect From Life With Systemic Lupus (everydayhealth.com)